{"id":77050,"date":"2019-06-15T08:00:26","date_gmt":"2019-06-15T06:00:26","guid":{"rendered":"https:\/\/staging-blodomloppet.nkel.se\/?p=77050"},"modified":"2024-08-19T09:03:26","modified_gmt":"2024-08-19T07:03:26","slug":"plasmagivare-hjalper-petter-sefton","status":"publish","type":"post","link":"https:\/\/blodomloppet.se\/?p=77050","title":{"rendered":"Plasmagivare hj\u00e4lper nio\u00e5rige Petter Sefton"},"content":{"rendered":"

1,5 liter plasma ger de ungef\u00e4rliga 6,6 gram gammaglobulin som Petter beh\u00f6ver per vecka f\u00f6r att \u00f6verleva sin sjukdom. Det kr\u00e4vs 2-3 plasmagivare per vecka f\u00f6r att f\u00e5 ut den m\u00e4ngden gammaglobulin, som dessutom kommer att beh\u00f6va \u00f6kas i och med att Petter blir \u00e4ldre och beh\u00f6ver st\u00f6rre doser medicin.<\/p>\n

Den immunbristsjukdom Petter lider av kallas f\u00f6rkortat f\u00f6r XLA (X-kromosombunden agammaglobulinemi, ocks\u00e5 kallad Brutons sjukdom) och inneb\u00e4r en n\u00e4st intill total avsaknad av immunglobuliner och kroppen producerar inga egna antikroppar. Detta g\u00f6r att kroppen har sv\u00e5rt att st\u00e5 emot attacker fr\u00e5n bakteriella infektioner och kroppen beh\u00f6ver d\u00e4rf\u00f6r ett kontinuerligt tillskott av gammaglobulinet.<\/p>\n

Brutons sjukdom<\/h2>\n

Sjukdomen drabbar enbart pojkar p\u00e5 grund av ett fel i X-kromosomen och orsakar ofta envisa bakteriella infektioner under de f\u00f6rsta \u00e5ren i livet. I Petters fall tog det sig till en b\u00f6rjan i uttryck i envisa \u00f6roninflammationer. Mamma Jennie ber\u00e4ttar hur ingen anade n\u00e5got onormalt d\u00e5 hennes graviditet med Petter var fullg\u00e5ngen och normal.<\/p>\n

Inte f\u00f6rr\u00e4n Petter drabbades av Scharlakansfeber vid tv\u00e5 \u00e5rs \u00e5lder b\u00f6rjade l\u00e4karna ana att n\u00e5got inte stod r\u00e4tt till. Det dr\u00f6jde ytterligare 9 m\u00e5nader tills man vid en blodprovstagning uppt\u00e4ckte att Petter f\u00f6tts med Brutons sjukdom. Detta f\u00f6rlopp \u00e4r inget ovanligt och Jennie som \u00e4ven \u00e4r engagerad i riksorganisationen PIO (prim\u00e4r immunbrist organisationen) ber\u00e4ttar att det \u00e4r m\u00e5nga m\u00e4nniskor som f\u00e5r v\u00e4nta l\u00e4nge f\u00f6r att f\u00e5 sin diagnos eller som f\u00f6rblir odiagnostiserade.<\/p>\n

Sprider kunskap om immunbristsjukdomar\u00a0<\/strong><\/h2>\n

Det finns idag mellan 25-30 personer som lider av Brutons sjukdom och ytterligare 3\u00a0000 personer som lider av en annan form av immunbristsjukdomar. Jennie ber\u00e4ttar att man uppskattar hur ytterligare 2\u00a0000 personer i Sverige \u00e4r odiagnostiserade och d\u00e4rf\u00f6r f\u00f6rblir obehandlade, i vissa fall kostar det barn livet i tidig \u00e5lder.<\/p>\n

Ett av PIO:s uppdrag \u00e4r att hj\u00e4lpa sina medlemmar genom att sprida kunskap om immunbristsjukdomar till allm\u00e4nheten, politiker och \u00e4ven l\u00e4karna d\u00e5 det beh\u00f6ver ske en kunskaps\u00f6kning inom sjukv\u00e5rden menar Jennie. Immunbristsjukdomar \u00e4r \u00e4nnu ett relativt outforskat omr\u00e5de och det beh\u00f6vs mer resurser f\u00f6r att inte minst utveckla medicinen som utvinns av just plasma. Jennie kan \u00e4ven vittna om att det p\u00e5 grund av denna kunskapslucka \u00e4ven saknats st\u00f6d f\u00f6r henne som f\u00f6r\u00e4lder under processen.<\/p>\n

Som en f\u00f6ljd av Petters tillst\u00e5nd fick Jennie s\u00e4ga upp sig som f\u00f6rskolel\u00e4rare p\u00e5 grund av den stora infektionsrisken. Hon ber\u00e4ttar \u00e4ven hur hon l\u00e4st igenom otaligt m\u00e5nga pappersluntor om immunbristsjukdomar och det kan f\u00f6r en utomst\u00e5ende verka som att Jennie snarare arbetar som specialist som \u00e4n n\u00e5got annat.<\/p>\n

Beroende av plasmagivare<\/h2>\n

F\u00f6r Petter sj\u00e4lv kommer sjukdomen inneb\u00e4ra en rad olika saker. Tillst\u00e5ndet \u00e4r kroniskt och kommer d\u00e4rf\u00f6r att finnas med honom hela livet, vilket kommer inneb\u00e4ra en konstant risk f\u00f6r att drabbas av bakteriella infektioner och d\u00e4rmed kr\u00e4va extra noggrannhet kring vilka milj\u00f6er man befinner sig i. Men tack vare alla plasmagivare f\u00e5r Petter den m\u00e4ngd medicin han beh\u00f6ver, som han dessutom idag kan ta sj\u00e4lv i hemmamilj\u00f6n.<\/p>\n

Behovet av plasma \u00e4r stort och den medicin som kan utvinnas av produkten har en livsg\u00f6rande betydelse.<\/p>\n

Tack alla givare, ni g\u00f6r skillnad!<\/p>\n

L\u00e4s mer om blodgivning h\u00e4r hos GeBlod.<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Petter Sefton \u00e4r 9 \u00e5r gammal och har immunbristsjukdomen Brutons och beh\u00f6ver 1,5 liter plasma per vecka f\u00f6r att \u00f6verleva sin sjukdom.<\/p>\n","protected":false},"author":30,"featured_media":77051,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[18],"tags":[37],"class_list":["post-77050","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nyheter","tag-blodgivning"],"acf":[],"yoast_head":"\nPlasmagivare hj\u00e4lper nio\u00e5rige Petter Sefton - Blodomloppet 2026<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/blodomloppet.se\/?p=77050\" \/>\n<meta property=\"og:locale\" content=\"sv_SE\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Plasmagivare hj\u00e4lper nio\u00e5rige Petter Sefton - 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